Sunday, March 30, 2014

I *L O V E* The Uniqueness of Autism

 I love Levi exactly the way he is.

 I’m not saying I love all the challenges that necessarily have come along with it…but then again, doesn’t God say to count it all joy…Doesn’t He use even the difficult things in our life to produce character?
Romans 5:3 says, “Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance;” I know that the challenges and trials that Levi and the rest of us endure because of his special challenges will produce a beautiful "finished product" in us all. Those very things will cause us to be unique, fine and valuable people set aside for God's special purposes. God has made that promise to us.

 Levi has taught me that there is more to life than meets the eye. The gifts that people with Autism have would not exist without the Autism. Plain and simple. Did you know that you can actually bend  the stream of water coming out of a faucet? Neither did I, until Levi showed me one day. This day was a true awakening for me. It was when I realized that if I would take the time to enter into Levi’s world, I just may realize why he did some of the quirky things he does. It also helped us realize that his world wasn’t all doom and gloom either. Because a lot of the things that Autistic people do really are different and quirky, most of us fail to realize that there is a real reason they’re doing those repetitive behaviors, called stimming.

  So, Trevor and I came up with a Polder Family definition for Autism:

 Autism-  a unique circuitry of the brain, gifted to individuals, whom God has chosen to fulfill His purposes through those special talents and abilities that only Autistic individuals possess.
.
 I know, it probably won’t make it into a modern version of some well-known dictionary, but we needed to do this so that we could pin down, in a sentence, how we really feel about Autism.
   
 We first realized this concept when our son, Caleb, now 22, experienced serious reading difficulties as a child. I tried so hard to teach Caleb to read. I couldn’t understand why the same teaching techniques I had used for my other children simply wouldn’t work for Caleb. Keeping Caleb’s self-esteem intact through this process was very important to us, so we made sure that he understood that his inability to read had nothing to do with his intelligence. The fact that he was extremely intelligent couldn’t have been more obvious, since he had the ability to understand how anything electronic or mechanical (or pretty much anything) was put together and how it worked. We saw at a very early age that he was extremely gifted. Although we knew we would have to figure out the problem with reading, we kept a strong focus on his awesome talents and abilities. In the middle of trying to solve this mystery, we also kept the idea in the forefront that all children have a style of learning and that the problem we were encountering was really a problem with ourselves and less of a problem with him. The answer was going to be how to figure out his style of learning. Funny, because I didn’t totally understand this, but there was something in me that knew we were the key.

 Caleb is Dyslexic. Yes. It’s a sort of a label, but is that really all that bad? It’s just a tag we’ve put on an individual that’s mind thinks in a very different, detailed and intricate manner. Dyslexia can have negative challenges that can be hurdled. But more than that, it is a special gift that some people have been given by their Creator. And it is awesome. Caleb’s Dyslexia, given to him by God, has given him very unique abilities that many of us don’t possess. So many of us “major” only in certain areas. For him, it’s different. He has an uncanny understanding of how to make most anything work. It’s kind of “across the board”. If someone needs an amateur radio fixed…he can fix it. If we can’t figure out how to make an architectural design come together when we’re adding on to the back of the house…ask Caleb, because he can figure it out. I’m serious! And…we’ve given him a name for his multi-talented self, “Wonderboy” (affectionately J). With the proper training from Davis Dyslexia, we were able to identify the proper learning style that he needed, and were able to give Caleb the gift of reading. Caleb is an avid reader now and has been for many years. The details of how we arrived there is a delightful and inspiring story by itself that I hope to put in writing one day.

 Ok, so yes. Dyslexia and Autism are “very” different. But I think there are similarities in the way that God has chosen to allow the brain to develop differently with these persons. They are awesomely gifted and intelligent individuals that God designed this way for some super-duper special purpose.

 God made Levi just the way he is. Our job is to provide the most optimum learning environment that we possibly can, and in the process, to make sure that Levi knows without a shadow of a doubt that his family absolutely adores him and believes in him! God has a special purpose for Levi and I am genuinely excited to see how God’s plan’s unfold in his life. He already has brought so much depth and a new level of selflessness into our lives. He’s also given us a strong sense of determination. I thank God that he has blessed our family by allowing Levi to be a part of us.

 I’m not going to lie. I can't tell you how many times through the years I have watched Levi from a distance, and could not stop the tears from pouring down my face. I have dealt with so much grief trying to understand what it must be like for him to want so badly to express himself and not being able to utter even a single word. Try to imagine what it would be like. I cannot just settle with myself that Levi will always be like this. I’m going to believe that Levi can talk and I’m going to give him every opportunity if I have to move mountains to do it.

 What if God chooses for Levi to stay in a “low-functioning” state of Autism? What if he never talks? What if he never reads or picks flowers for me. What if he never runs from across the yard, yelling, “I love you, Mommy.”? Will it be because we didn’t believe enough? We didn’t pray hard enough…long enough? Maybe, we didn’t speak enough positive statements over him…or, maybe we caused him to be this way by speaking it into existence because we’ve dared to speak with our mouth, "Levi is Autistic.".

 Absolutely not!

 I will never believe anything other than the fact that nothing can happen to us in our life that doesn’t come through the Hand of God.

 Even when we don’t understand.

 We can trust.

That brings unbelievable comfort to my heart.


April is Autism Awareness month. I hope you’ll join us as we continue journaling through the month. We are getting closer and closer to our trip to Massachusetts in Mid-June and we are super excited to be making progress on our goal of raising the money for this trip and Levi’s therapy room.  We would be overwhelmingly grateful if you would consider donating to Levi’s campaign, which we have named “Levi’s Mountain”. You can donate securely through this blog by going to the top of his home page and clicking on "Donate".

Angela, Levi's Mommy <3

Tuesday, March 25, 2014

A New Way to Wind Down


 Levi has a really hard time winding down at night. Sometimes he'll stay up into the wee hours of the morning. 80% of the time, someone is going to go without a significant amount of sleep (usually Trevor and I...but over the last couple weeks, Levi's brother, Christian has been helping out). We've tried lots of different things, but I think we've come up with a solution. We've moved the crib out of our room and put it out on the landing. LindyAnn is 6 months and has never slept in it. Because of her heart surgery, I just haven't gotten there yet. For now, we'll keep her in bed with us! :) Then, we moved the futon into our room, where the crib use to be. So, Levi is sharing a room with us. It's better this way because if he gets up in the middle of the night I will definitely hear him.

So, we went through some rough nights at first. He still wanted to stay up till 3:00 am.

 Trevor came up with an idea in an effort to help Levi wind down and to break his stimming cycle before he goes to bed. So, what he's doing is when the house starts to settle down, Trevor will spend about an hour with him, one-on-one. I think Trevor is onto something. So far, it seems to be working. Last night, Trevor coaxed Levi to throw a light-weight ball back and forth for about 20 minutes. This is always a great achievement for Levi because his attention span is hard to keep. The trick is for Trevor to stay animated enough to keep his attention and Levi loves it. Levi decided after a while, that he just wasn't interested in Trevor's game anymore, which we expected. Levi at this point needs to have a break. One of Levi's favorite stimming activities is flipping books. So,Levi grabs one of his favorite books (an old Strong's Concordance,HA!) and starts flipping away. Trevor grabs one of the "flippy" books, lays on the floor about 2 1/2 feet from him, and flips away with him. For the first couple minutes, Levi didn't even notice him. Then I started watching him peek over at the corner of his eyes really fast. Trevor became increasingly interesting to Levi. After a few minutes of Levi sneaking peeks at Trevor flipping his book, he slowly "slithered" over to Trevor, with his head directly over Trevor's book and watched him, as if he thought maybe there was something more interesting about Trevor's book than his. Then he layed his head down while looking at Trevor and started stroking his face and smiling at him. It was so precious that I had wished I had captured it all on video.

 This is just so big, because one of the aspects of Autism is that these little guys just don't find us (people) very interesting. This is one of our goals. To be so interesting that he wants to have relationships.

 We'll learn to use this technique more effectively at the SonRise Program. We have about 10 weeks before we go and we are brimming over with excitement.

 Here are some pictures from last night, right after Levi crawled over to Trevor.





Angela, Levi's Mommy

Thursday, March 20, 2014

Levi's First Auction...coming up!

 Our auction is coming up! We have a little more than 24 hours to finish preparing for it. We have had an even bigger response from people who have donated and are supporting the auction than we ever imagined was possible. 


 Let me tell you that we have had to come way out of our comfort zone in putting this together! We have had to run a full-fledged campaign, which has meant a lot of face-to-face encounters with new people...definitely not something that any of us find easy to do! But we have been so rewarded by the amazing generosity and willingness- even enthusiasm- of so many people that we've met locally and online through this campaign.

When you all of a sudden have a worthy cause to fight for, especially when it involves one of your children, you find abilities and motivation inside of yourself that you didn't know you had :)

 In this case, it has really paid off. We have people all over the web, and our local community, who have donated and/or are helping us spread the word. Just yesterday we found out that a story on Levi's Mountain, and the auction that we are holding for Levi Friday and Saturday, will be in our local newspaper

 Do you think it's a coincidence that I walked into a office supply store here in Rogersville to ask if they would like to donate and advertise for Levi's Mountain Auction, and the mother of one of our local newspaper editors happened to overhear me talking about the auction? She gave me her daughters name and number and told me to call her daughter- that she may be able to help us get the story into the paper. I called Sarah, and she's working on a story, and hopefully it will be in Saturday's paper. 

 I think we must have a God that loves to be super involved with everything that we do. Just like we are with our own children, He desires to do the very best for His own. 

 Thank you for all of your support, and we hope we get to see you Friday evening and Saturday at the auction! Help us make it a success :)

Angela, Levi's Mommy

Wednesday, March 12, 2014

Why We're Doing Son-Rise instead of ABA



 

I am a natural-born teacher. I've homeschooled all of my children from the time that they were old enough to be attentive. Many of my children have been homeschooled since two years of age. When Levi was a year old, I started noticing that he was not giving me proper eye-contact, and there was definitely something different than what I'd seen with my other infants. I didn't feel like he was responding to me the same way that my other babies had. He also did not have words. As he got older, we realized that the teacher/student role playing that I was accustomed to in homeschooling my other children was not working with Levi and it was as if he didn't understand anything we said to him. When he was 3 we began with assessments and evaluations. Levi was diagnosed with severe "Classic" Autism and moderate "Intellectual Disability" (the politically correct way of saying "retarded"). I cannot begin to tell you what that car ride was like for us as we drove home that evening with Levi. It was devastating to hear the things that they told us that day. And WHY did they have to tell us everything right in front of Levi. We know that he must understand some of what we say, so how much of that did he get? He was spoken about as if he wasn't even in the room.

We figured out early on that the only way to get Levi to notice us or respond to us at all was to stop trying to teach him things he didnt know, but to get on his level. Get into his world. Basically, we needed to let Levi teach us. We watched him. Watched what he was doing, and then did it with him. And he noticed that. We're communicating to him that we think he is so awesome that we want to play with him the way he plays. To do what he does. To make the noises he makes... That we dont think he's weird. For us, it's communication. 

That is where Son Rise vs. ABA comes in.

ABA is the western medicine of Austism. Western medicine seeks to treat the symptoms instead of the root cause of the problem. 

ABA is built around the assumption that there is no hope for any degree of recovery, and is based on modifying behaviors that are considered undesirable. There are many parents and therapists that are happy and content to use this approach, but there is also a growing number of discouraged and discontented parents and therapists who are not satisfied with the end result of ABA. For many, the end result of ABA is life-long, ongoing therapy and zero hope of recovery. We are among those parents who are looking for a way to conquer Autism, not just cope with it. The Son Rise Program offers real hope that ABA does not. 

The exciting thing about this part of our journey with Levi is that the principles that the SonRise Program revolve around, are what we have been doing with Levi for years, except it is an entire program put together by professionally trained individuals. The "SonRise StartUp" will teach us how to maximize our time spent with Levi and use his interest as a highly motivational springboard for learning. We also will have ongoing support to help us along the way! AND, there is story after story of children just like Levi who have recovered from Austim completely and are living the life of a typical child! What parent could not begin to hope?

So.....can I go back to the part of the story where Trevor and I were driving home with Levi after we were told about Levi's diagnosis when he was 3? For much of the car ride we were so heavy and burdened that neither of us could speak, but when we found the words, we told Levi that we were not letting that diagnosis hold him back and that we were not going to let him down. We told him how very smart he was and that Mommy and Daddy were going to make sure that he had every opportunity to be all that Jesus intended him to be. We told him how very much we loved him. And...that we believed in him. We feel that the Son Rise Program is the fulfillment of that promise we made to him in the car, six years ago.     

I want to thank all of you again for how you have taken such an interest in our family. Especially our sweet little Levi. We are forever grateful to each one of you. We are so thrilled to be able to share Levi's growth and success as we climb "Levi's Mountain" and it has meant more than you know that so many of you have chosen to join us in the climb!

<3 Levi's mommy, Angela


To make a secure donation to Levi's Mountain through PayPal, click here. 

Wednesday, March 5, 2014

Urgent Request!

URGENT: Most of you know that we have a 9 year old autistic son, Levi, and are in the process of raising money for a week long training seminar at the Autism Treatment Center of America. This week long seminar will give us the tools and training we need to come home and build a specialized, home based therapy program specifically designed to meet Levi's needs. This program is called the SonRise Program. The Austim Treatment Center of America is having amazing results with autistic children just like Levi by applying the principles of the SonRise Program (which they founded).

We have just found out that we are being offered a large scholarship, which will greatly reduce the amount of money that we have to raise for our tuition. I and one of the older girls will be going for the training. Our tuition would normally be $2200 each. We are each recieving a $350 referral discount, plus both of us are being offered a significant scholarship award (we have been asked to keep the amount of the scolarship private).

This scholarship award is only valid until March 11th. We must register for the SonRise StartUp by March 11th in order to get the scholarship award. That means that we need to raise $795 (downpayment) each in LESS THAN A WEEK (a total of $1590).

Please prayerfully consider helping us to help Levi by donating to Levi's Mountain! It seems like an awful lot to raise in a short amount of time, but if everyone pitches in and helps just a little, I know that it is do-able! I don't think the Lord has provided a scholarship without providing the means to take utilize it.

As our "Thank You" for every donation, we will be giving coupons or gift certificates from Polder's Old World Market in the following amounts:

-For a $10 donation you will recieve a coupon code for 10% off your next order.
-For a $25-$35 donation you will recieve a $16 gift certificate.
-For a $50-$75 donation you will recieve a $28 gift certificate.
-For a $100-$150 donation you will recieve a $60 gift certificate.
-For a $250 donation you will recieve a $150 gift certificate.
-For a $500 donation you will recieve a $300 gift certificate.
-For a $1000 donation you will recieve a $700 gift certificate.

Your donation is a valuable investment into a child's life, and would mean the world to all of us, including Levi.

Donations may be securely made on Levi's blog, here:

http://levismountain.blogspot.com/p/donate.html

You may donate with your Paypal account, or with a debit or credit card. Your donation will be processed by Paypal, and your payment information is entirely secure.

Thank you ALL, from our whole family.

Please share and pray!